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At the Hospital - getting infused

01/03/07

  12:45:30 pm by Vincent The Dragon, Categories: Announcements [A]

So, here I sit…four hours stuck to a chair in the infusion ward getting my Remicade treatment. I was hoping to come up with something a bit more creative….however my brain seems to not want to co-operate….Nope I got nothing.

Oh well, I guess I will expound upon why I am here. Remicade is an Imunomodulater (big word). It is a modified protein grown from a combination of human and mouse proteins that acts as an Anti-TNF-A inhibitor. Anti TNF-A is one of the trigger cells that make your immune system attack whatever it needs to. People with Crohns have an over abundance of Anti TNF-A and with nothing for the immune system to fight, it starts attacking stuff it normally should not. In Crohns people’s cases, it attacks something in the gastro-intestinal track and causes problems there along with causing some systemic problems like arthritis and joint pain, etc. Remicade sticks to the spots Anti TNF-A would normally so the level of TNF-A actually super increases and tricks the body into stopping production of the protein.

I have been on Remicade treatments since it first came out…does some math…seems like it has been ten years at least. I was DX with Crohns about 18 years ago now. I was in the top severe range; barely able to function with handfuls of pills and lots of rest and pain…lots of pain. It took a long time to get to were I am now; mostly normal and ready to move on with my life but since it took me out of the loop socially during those years one would normally explore those avenues; I can’t help but feel a bit retarded in the areas of interpersonal stuff on top of being quite shy. I am trying to work on it; but I can’t help but feel that my window of opportunity for finding a mate has passed me by. You reach an age were your lack of experience is just weird and since I don’t have any real friends I don’t get exposed to social situations anyway. I am not the kind of dragon that goes out on his own; I need someone to drag me along with them…

Actually, the discussion last night in SecondLife I was participating in kind of hit on it a bit. The discussion was about going to the movies. I was like, well I got a big tv and a nice sound system, so like why bother. The response was to go out with friends and have fun. I responded that the only friends I have are known only to me as a collection of 0’s and 1’s…the discussion ended with that…

I think I will stop now; I seem to be depressing my self. Maybe I’ll try to take a nap; I seem to be tired lately, not sleeping well.

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This is my first attempt at blogging and replaces my original web site that has been online since...a long time ago. If you came looking for The Dragon BathHouse and Cafe, this is it's replacement. There will be lots do do here and if you are not carefull you will learn all about me. I might learn about me as well, along with metting and/or learning about you and that's the whole point isn't it ?

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